As of 11/29/2012, comments on this entry are closed.
I’ve had type 1 diabetes for nearly my whole life (18 years), and I’ve graduated college and moved away from home. As I’m very open about having T1D, I’m often asked about what diabetes is, what the difference is between type 1 and 2 (PSA: they are not the same at all, T1D is autoimmune, Type 2 is much more common and is not), and whether or not I can eat that.
As I have recently moved away from all my usual support, I’ve been dealing with some major Diabetes Burnout. I’ve found a few things that help me cope, but am always open for suggestions (yes I’m looking into therapy and support groups). But my real issue lies in how to deal with the very well-intentioned people who ask invasive questions (normally I enjoy answering them and educating people about diabetes), make assumptions about what I can and cannot eat (anything I please, thankyouverymuch!), compare me to their 80 year old grandpa with type 2/their friend’s college roommate who had it (which OBVIOUSLY means they know everything there is to know about T1D), or freak out if I’m having an issue. At this point in my life, I don’t feel up to patiently explaining things the way I usually do, and the way people freak out if something happens makes it hard/impossible to tell people I’m having an issue and need a minute/a snack/to wear my glasses /pee every 20 minutes/etc, which, in turn, fuels the burnout.
Any advice on how to get people to not freak out and stop attempting to be so very helpful without me first asking for help? I really don’t want to be rude to them, they just don’t know much about T1D, as it is very rare and the treatments have radically changed in the last 15 years.
I’m so sorry that I didn’t get around to this before the U.S.A.’s National Day of Eating, and I apologize if you had to do another round of Yes-I-Can-So-Have-Some-Pie with Auntie Helpful last week.
I think the world would be a better place if we stuck to one acceptable way of commenting on what is on a fellow adult’s plate. That way is “That looks delicious” + some variation of “Where did you get it/how did you make it/does it taste as good as it looks/smells/Is it like this other thing that is also delicious?”