Archive

Disability

Dear Captain Awkward,

Almost a year and a half ago, while I was in tenuous material circumstances myself, my partner of less than a year got sick. One minute they were having a biopsy and the next minute they were fresh out of what turned out to be cancer surgery. Shocked, I didn’t have the presence of mind to prevent post-surgery on my couch from turning into living on my couch. 

Frustrated with my overwhelming sense of powerlessness in the face of epic shitty circumstances (which also later turned out to include partner’s mental health crash-and-burn), and failing to get caretaking support from their family, my community, and whatever social safety net ostensibly exists for someone like my now-ex,I started aggressively pursuing work. 

I struck a deal with my friend to  help with their small online business. Working for them for the past almost year has allowed me not only to  address my recent and childhood traumas in therapy, but also to enroll in a course to learn their trade.

They offered me partnership, I took it. We’ve been splitting the revenues, but have yet to finalize our partnership agreement.

So here is the deal: my prospective business partner also struggles with chronic and mental illness. Sometimes getting them to do any work even on a flexible timeframe is like pulling teeth. Right now, the money coming in is by-and-large from a combo of their old work and my current work.

I am torn.

They extended a hand to me when I desperately needed it, and they really did help give me space to heal. Having experienced mental illness and loved someone who has mental illness, I have a hard time writing them off just because they’re difficult to work with. They were so patient with me when there were some days, and some weeks, when I just couldn’t work.

On the other hand, I *did* do a lot of work. I went to therapy, I got my ex off my couch, I revived their business, and I invested in professional development education which will empower me, if I choose, to work on my own. After everything I just went through, and from where I stand now, I am seriously balking at formalizing my commitment to this person who is reliably unreliable about doing anything besides paying me.

What should I do? 

So Burnt Out (She)

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Hi Captain! All names have been changed to protect the guilty. Sorry this is long, but the backstory is rather necessary.

I’m a 45 year old pansexual poly woman. I’ve been with Wolfie since I was 18, married him at 23, and had two sons with him, who are now both out of the house. We’re also kinky, both dominants. I met Jon through a kink website, and while our relationship started as purely D/s play partners with friendship, we’ve fallen in love over time. Jon wears my collar. Wolfie’s known about the relationship with Jon from the beginning. Wolfie and Jon get along really well. Over the last four years, Jon and I have gotten much closer. And he confessed last fall that he wants to marry me when Wolfie dies.

Wolfie’s ten years older than me, so he’s 55, and while I knew demographics suggested I’d outlive him, it’s another thing to have it brought home to you when you’re still feeling young. He smoked for most of our marriage and well before, has worked a lot of physical jobs, gotten in a lot of fights, and…. the outcome is congestive heart failure, COPD, arthritis in all his joints, and diabetes. He’s on disability. I could wake up to him dead in bed beside me tomorrow, to put it bluntly. As it is, I’m pretty sure he won’t make it to 60. He is not trying to manage his conditions. He is in total denial of all of this. As far as he’s concerned, he has about thirty years of happy retirement to look forward to.

I had been going down (it’s an hour drive, we live on opposite sides of a large metropolitan area) to see Jon for the weekend once a month for about eight months of 2016/17. Jon developed a drinking problem last fall, and in the course of his achieving sobriety, I spent a week with him on a couple of different occasions, and that blew away any reservations we had about our eventual future. We also grew close enough, and our relationship deepened enough, that I now view myself as having two primary partners. We three decided that Wolfie and I should come down to Jon’s place and spend the weekend, unless Wolfie was busy, in which case he’d drop me off or Jon would come get me and Jon and I would have the weekend alone.

Well, I’ve done two weekends with Jon alone, and one weekend with Jon and Wolfie, and Jon said to me that Saturday night, “Next weekend, I’d rather have neither of you come than both of you come.” And I understood why. Wolfie likes to be the center of attention. He has needs. Actually, he has NEEDS. It’s hard for him to get up and down, and the arthritis makes it hard for him to stand very long at all. And he has no wind, so he gets out of breath at the slightest exertion. So it’s, “Get me a glass of tea. Get me the ketchup. Pick up the fork I dropped. Help me on with my shoes. Take my socks off.” He also needs to be the most important man in my life, flattered and reassured constantly. It honestly feels like having a child hanging off me. When I’m at home, it even interferes with the housework and cooking; he wants me to be right there within view.

This is newish behavior. He’s never been the same after the hospitalization in 2015 when they found out he had congestive heart failure and drained 30 pounds of fluid. He’s King Baby all the time now. It’s interfering with his relationship with his sons, and it’s building up a lot of unhappiness in me. Needless to say, our sex life is non existent. I have my time with Jon as a safety valve…. 50 or so hours where I get to be a beloved and adored adult woman with her own needs and desires sweetly catered to, and then back to the rest of the week of caregiving for someone who never says “Thank you.” I can stand it, because I don’t have to stand it for another five years, even. He’s already showing signs of the heart failure getting worse.

I know that I should hold a firm boundary with him about my weekends with Jon. But if I am firm about this, he will get tremendously hurt, yell, and start talking about how maybe he should go talk to a lawyer about a divorce. I don’t want to divorce him. I love him, and have loved him, for more than half my life. It matters to me to be beside him when he goes. And while Wolfie knows (we did have this conversation last fall) that Jon wants to marry me someday, so “he doesn’t have to worry about me”, he’s not willing to do some other things that need to be done. I’d like him to write down the stories about his firearm collection so his sons can have them, for example. I’d like to clean out the basement. And I can’t talk about this stuff because he’s totally in denial.

So how do I hold my boundary without destroying my marriage or damaging my other relationship? And how do I cope with the denial without going insane?

Thanks in advance to all.
The Lady Perplexed

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Hi Captain,

I am an adult (early 30’s) child of two wonderful people who are going through some turbulence in their marriage–that thing of having an empty nest/rediscovering each other/discovering they have communication issues that have just been sitting there for 30+ years and are now blowing up. They’re going to get counseling, which hopefully is step one of getting this all resolved, but in the meantime, I need some advice about navigating things with my mom. We live in different parts of the country, but we are on very good terms with one another, and talk on the phone a couple of times a week.

The current problem I have is that my mom calls me to vent about how hurt and despairing she is about her marriage, how my dad unintentionally really got under her skin or triggered her PTSD (she grew up in an abusive home). I should clarify that neither she nor I think that my dad is abusive; he just sometimes doesn’t understand what’s wrong or how to fix it. He gets hurt that she’s mad at him for reasons he doesn’t understand, then she gets hurt that he doesn’t understand, which restarts the spiral, etc. etc. etc. And then I get to hear all about the fight and how upset she is. The fighting is not constant, but it cycles around from time to time, and when it happens, it’s pretty intense.

She has been talking to me about this stuff for years–starting from when I was honestly probably still too young to deal with it–and it is super, super hard for me. I love, like, and respect both of my parents, and it feels like a punch in the gut to hear about them hurting each other, especially because I know they both deeply love each other and are trying to do right by each other. I don’t want to deny my mom the basic emotional support that friends show each other when going through a rough time. But when she talks about her marriage, it’s so hard for me, because that’s my dad. I guess for this part I feel like I need to get better at either a) not getting so rocked when we talk about this, or b) asking my mom to leave me out of it in a way that won’t absolutely crush her–especially in light of the fact that it’s been going on so long.

So that’s the current problem; the potential future one is that my mom has floated the idea of leaving my dad if things don’t get better, and she would want to come move in with me. She is disabled–still pretty independent, but unable to work, and living on her own would be a real struggle. My other sibling is kinda flaking out on the world right now and is not an option; my mom’s side of the family is the reason she has PTSD and is therefore also not an option. And as much as I love (and like!) my mom, and as much as I’d love to live in the same state again, it hurts so much to think of her moving in with me because of leaving my dad. And it would substantially disrupt my life to accommodate her. It’s not completely unworkable–but man it would be hard. If my dad died–or abused her or cheated on her–I would take her in a heartbeat with no complaints and no hesitation. But knowing that she was staying with me because she and dad gave up on each other feels very different. I worry about what it would do to my relationship with my dad. I worry about what it would do for my financial and living situation. If she decides she would be happier living with me, well, maybe she’d be right–but I’m pretty sure I’d be less happy, and I’m not sure she’s done the math on that, and I’m not sure how to tell her without making her feel rejected.

They’re adults, and are not beholden to me, so I know that pulling a “think of your (grown) children” talk would be beyond inappropriate. But–it would directly affect me. And of course I want them to work it out. I can’t tell where healthy boundaries end and selfishness begins here for me.

I guess the biggest underlying struggle I have is that I am my mom’s closest friend, and the person she trusts most in the entire world. I know this because she has told me so, repeatedly–starting when I was probably a bit too young for that to be entirely cool. And as much as I am grateful that she believes I love her and like her, it kinda scares me to be the only one she really trusts. She’s recently been seeing a therapist (thank GOD–seriously, that took years to talk her into), so I am no longer the only person she talks to at all, but I’m still the one she trusts most.

Practically speaking, I am almost certainly her only option for somewhere else to live, and I’m not sure there’s much to be done about that. Emotionally speaking, I am the only one she’s fully willing to lean on–and I feel like that part is not quite so inevitable, and also not spectacularly healthy, but I don’t know how to fix it without being really devastating to her.

Again, I love and like my mom so, so much, and I’m willing to knuckle down and do the right thing even if it’s costly to me–but I also don’t want to be shouldering burdens that I shouldn’t be taking on.

Any advice/scripts are greatly appreciated.

Signed,
Boundary-Challenged Adult Daughter

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Hello Captain and fellow Awkward travelers,

My husband and I, along with our 16-month-old daughter, moved to a new city on Saturday. The reason for our move is that I just finished medical school and will be beginning residency in June.

Husband woke up this morning and said he’s not sure he can stay in our new rental because his allergies have been worse. He feels like he can’t breathe or sleep. He has a long list of tasks he wants me to do to banish all possible allergens from our home, but says there’s a possibility that he’ll want to move anyway. I’m now so stressed thinking about the financial and logistical costs of a second move that I can barely put words together.

That’s the short version. Here is some other relevant information, in no very thoughtful order:

  • There was nothing about this rental that would have indicated it was a hotbed of allergens before we signed the 12-month lease. It’s about 15 years old, appears well-kept, and by the landlord’s report was previously occupied by a non-pet-owner.
  • There’s no reason to expect another place would be a better bet from an allergy perspective unless it were a brand new construction, which is quite expensive in our area.
  • We have no savings.
  • Husband has a number of chronic, uncomfortable-but-not-life-threatening physical health issues that require considerable effort on his part to manage.
  • He also has (and acknowledges that he has) anxiety that presents as and amplifies physical symptoms. He’s been doing much better from this perspective over the past few months, but during my pregnancy and maternity leave, he was basically in a sustained crisis (frequent visits to the ER and different kinds of specialists; lots of money spent on vitamins and supplements; multiple restrictive diets attempted; physical activity, including things like preparing his own food or holding the baby, extremely limited). 
  • He also is in recovery from dependence on prescription drugs, to which he attributes the bulk of his ongoing health problems; because of this, he has a deep distrust of physicians.
  • During my pregnancy, we moved into a brand new apartment and then broke our lease after a month because there was loud construction noise that worsened his symptoms. We fought a lot about that decision, and I found it pretty traumatizing.
  • The division of domestic labor that was established when I was on leave and husband was incapable of holding the baby has proved distressingly stable. To put it bluntly, I don’t feel I can rely on him to do more than occasional daycare drop-offs and pickups, and even with those I expect a lot of complaining.
  • When people hear that I have a young toddler and am finishing medical school, they often assume I’m extremely competent and type-A, but in fact I’m pretty limited by anxiety, lack of energy, and attention problems. Most days I’m home I find it hard to do anything other than feed, clean up after, and play with my daughter.
  • Most of the time I’m utterly incapable of applying my medical curiosity or compassion to my husband’s suffering. If I’m honest, what I truly feel, deep in my body, is that I wish he would just suck it up. Sometimes I’m so unmoored by this feeling that I worry I’ll be a bad doctor.
  • I certainly don’t want to move, but I’d much rather move now than after I start work. I’m stressed out dealing with my husband, but I’m not done with the relationship, and I need even the limited help with parenting that he gives

Captain, I’m well aware of the codependency that screams from every sentence in my letter – but that seems like something that it takes years to get free of, and I need to get these things sorted now. What do I do?

-Desperate for Roots (she/her pronouns)

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Captain Awkward and the Awkward Army,

I recently accepted a position in a line of work that is brand new for me, exciting, mentally stimulating, and will enable me to finally be financially stable. This is all great.

Except.

Except for one co-worker, a trainee who was hired on at the same time as me and is in the same stage of training.

This co-worker has a bad habit of openly watching me and waiting for me to screw something up. Then she loves to make a big deal about it and “correct” my errors. Laughs loudly and points it out to the senior techs.

I realize that this is not a big deal. But, I have some issues with being watched. Growing up, my mom threatened my siblings and me with hiding cameras in the house to make sure we weren’t “sinning” or doing anything wrong while both parents were gone (we were latchkey kids, and I was the authority on site, as oldest kid). She was just off enough that we believed her. It created an environment of deep suspicion and paranoia growing up.

I was recently diagnosed with Social Anxiety Disorder as well. So being watched with the obvious intent to catch me screwing up + being around strange people in general= a perpetually nervous me. I am very competent and have historically received high reviews on my work… as long as I wasn’t being micro-managed or stared at.

Obviously I don’t want the anxiety she gives me to translate into actual poor performance. I really enjoy this job. It involves animals, who are naturally more receptive to hyper-aroused states in their human handlers. I don’t want my anxiety translating into anxiety for them.

I’m working on the anxiety and self esteem issues with my therapist, as well as dealing with the weird shit left over from my past.

What I need help with is a script or scripts for dealing with this co-worker. Polite requests to allow my trainer to train me and correct any errors have been met with complete brush-offs and stories of what an amazing manager/student/daughter/sister she is, which clearly makes her more qualified to police me.

Help!

Visibly Anxious

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Hi Captain Awkward,

To make a long story short, I was recently diagnosed with a genetic condition that explains why I’ve had full back pain for the past five years. In those five years between symptom onset and a diagnosis the pain has just gotten worse.

I’m only 19 and going to university but I come home during the summer so I can save money (the city where I go to university is so ridiculously expensive) and be with my family. Unfortunately, my family is not the most understanding when it comes to my pain. My mum has the same genetic condition but a much milder form and while she seems to acknowledge on an intellectual level that I am in constant pain and because of that am suffering from depression, this doesn’t translate well into words or actions. She just seems exasperated that I’m not able to work 9 hours a day 6 days a week anymore. (My dad hasn’t voiced an opinion on the matter but I sense he’s disappointed that I’m not living up to my full potential.)

I need your help with the following two situations:

1. I need to resign from my job. I work at a small independently owned business and my boss has been nothing but understanding when it comes to my pain. However, I can hardly make it through even just 5 1/2 hours of work and I feel it’s unfair to my coworkers that I can’t show up to work on anything resembling a consistent basis. What can I say to my boss when I quit that is short and sweet so I don’t burst into tears in front of him? I want to thank him for being understanding while acknowledging that I have not been the best employee of late due to my pain.

2. I then need to tell my parents about my resigning. I have to go back to university in September so I’m only really quitting a few weeks early but money is tight for me and as I said, my mum isn’t the most understanding when it comes to my pain. Do you have any scripts for saying, “Hey, Mum, I’ve quit my job a few weeks early so when you come home from work you’re going to see me lazing around on the couch but I’d like you not to judge me for that?”

The good news is that when I go back to university I can access proper health services again (because rural Canada absolutely sucks when it comes to healthcare access) and get the specialized physiotherapy I need to help manage my pain. But in the meantime, I can’t really do much about my situation. If you or your readers could help make my remaining weeks at home a little less emotionally painful, I would appreciate any scripts/advice you have.

Sincerely,
Sick and Tired
(female pronouns please)

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Dear Captain,

I have been retraining/job searching for at least 2 years.

My psychiatrist expressed that it would great if I could help with filing and organization. This is something my previous job (that I RAN from, as to develop other skills) utilized my talent to the point of burnout.

In the past few months our office visits have been… bizarre. All of the regular staff is gone, and patients that I recognize are manning the desk.

While I have no problem with that at all (I have things to work out, no reason I can not be an admin) I am beginning to worry.

Last time I visited her as a patient my psychiatrist was the only person present, and has unofficially made texting our main form of communication.When I came in to speak about about job responsibilities (which we scheduled via text) my psychiatrist was disheveled and definitely not dressed for either visitors or a professional interaction. Her office is in her home, and she had probably just woken up, but it still took me aback.

I continue to receive text messages that I cannot make heads or tails of. Typically they are accusations or word salads that I cannot understand. I have mentioned that these messages scare me and think that whatever is happening sound more like a police matter.

I know something is up, but I care for my Psychiatrist because of the help they provided in my darker times.

What can I do to help? I don’t want to judge but this is causing me tons of anxiety.

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